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Dr. Katerina Cerna

Postdoc und Koordinatorin im Projekt ACCESS

Raum: US-E 116
Telefon: –
Mail: katerina.cerna(at)uni-siegen.de

Vita

Dissertation: Gestaltung von Lernen und Wissen: Krankenschwestern und -pfleger in der Dauerbetreuung und Selbstüberwachungsdaten der Patienten
Betreuer der Dissertation: Jonas Ivarsson, Professor für Pädagogik, Alexandra Weilenmann,
Professor für Interaktionsdesign.
Studienbereiche: Krankenpflege, HCI, CSCW, Lernen

In meiner Arbeit konzentriere ich mich darauf, wie sich die Arbeit von Pflegekräften verändert, wenn sie Zugang zu einer neuen Art von Selbstüberwachungsdaten ihrer Patienten erhalten, und welche Auswirkungen dies auf ihre Arbeit in Bezug auf die berufliche Entwicklung hat. Genauer gesagt habe ich eine ethnographische Studie in einer Rehabilitationsklinik für Beckenkrebs durchgeführt, in der ich die Arbeit der Krankenschwestern in Bezug auf die Entwicklung und Nutzung einer mobilen Anwendung untersucht habe, die das Sammeln von Selbstüberwachungsdaten von Patienten unterstützt. Durch den Einsatz eines breiten Spektrums an qualitativen Methoden untersuche ich die Folgen der Teilnahme der Krankenschwestern am Designprozess der mobilen Anwendung und wie sich ihre Gespräche mit ihren Patienten verändern, wenn sie Zugang zu den neuen Daten erhalten.

Aktuelle Forschungsinteressen:

● Teilnahme: Wie kann man die Beteiligung von Interessensvertretern in verschiedenen Formen und Phasen des partizipativen Designprozesses unterstützen?
● Lernen: Wie können wir das Lernen und die Befähigung der Teilnehmer unterstützen, wenn sie Teil des partizipativen Designprozesses werden?
● Gemeinschaft: Wie können wir den Aufbau von Gemeinschaften rund um Technologien durch Design unterstützen?

ACCESS (Europäische Union, BMBF)

ACCESS ist ein multidisziplinäres und transnationales Forschungsprojekt, das von der Joint Programming Initiative (JPI) „More Years, Better Lives – The Potential and Challenges of Demographic Change“ gefördert wird.

Die Studie beschäftigt sich mit der digitalen Kompetenz älterer Menschen. Es werden sozial eingebettete Lernmöglichkeiten untersucht und erforscht, die es älteren Menschen mit geringen technischen Fähigkeiten und Fertigkeiten ermöglichen, mit moderner Technik in Kontakt zu kommen. Auf diese Weise sollen sie in der Lage sein, sinnvolle Wege zur Umsetzung der Technologie im täglichen Einsatz zu erlernen.

Das Projekt konzentriert sich auf den oft vernachlässigten Aspekt des lebenslangen Lernens für ältere Menschen, insbesondere im Hinblick auf assistive Technologien. Der länder-übergreifende Ansatz zeigt regionale und strukturelle Unterschiede und Hindernisse auf, denen ältere Menschen im Umgang mit Technik ausgesetzt sind. ACCESS setzt dabei auf unterschiedliche Lernprozesse (informell, non-formell und formal) in verschiedenen Lernarrangements als eine mögliche Lösung zur Bewältigung dieser Herausforderungen

Forschungsziele:

ACCESS

  • erforscht, implementiert und evaluiert neue Formen von sozial eingebetteten Lernmöglichkeiten für ältere Erwachsene mit geringen technischen Fähigkeiten.
  • zeigt Wege auf, wie die digitale Kompetenz in Bezug auf Internetkenntnisse und die alltägliche Nutzung von assistiven Technologien bei älteren Menschen verbessert werden kann.
  • zielt darauf ab, eine neue Lernkultur für das spätere Lernen zu fördern.

Weitere Informationen: https://www.wineme.uni-siegen.de/projekte/access/
Projekt-Webseite: http://access.wineme.fb5.uni-siegen.de/

Publikationen

2021


  • Designing for New Forms of Vulnerability: Exploring transformation and empowerment in times of COVID-19

    Struzek David, Cerna Katerina, Paluch Richard, Bittenbinder Sven, Müller Claudia, Reuter A
    2021 . doi:10.1145/3411763.3441339
    [BibTeX] [Download PDF]
    @inproceedings{struzek_designing_2021,
    title = {Designing for {New} {Forms} of {Vulnerability}: {Exploring} transformation and empowerment in times of {COVID}-19},
    volume = {Extended Abstracts of the 2021 CHI Conference on Human Factors in Computing Systems},
    url = {https://dl.acm.org/doi/10.1145/3411763.3441339},
    doi = {10.1145/3411763.3441339},
    author = {Struzek, David and Cerna, Katerina and Paluch, Richard and Bittenbinder, Sven and Müller, Claudia and Reuter, A},
    month = may,
    year = {2021},
    keywords = {italg},
    pages = {1--5},
    }

  • Making online participatory design work: Understanding the digital ecologies of older adults

    Cerna Katerina, Müller Claudia
    Proceedings of 19th European Conference on Computer-Supported Cooperative Work: 2021 . doi:10.18420/ecscw2021_n22
    [BibTeX] [Abstract] [Download PDF]
    Participatory design (PD) is a meaningful approach to involve older adults into design; however, currently we lack understanding how to do such work online. In our paper, we report from a study where we organized 19 PD workshops online with older adults. We argue that to do so in a meaningful way, a mutually shaped understanding of older adults’ digital ecologies is at the core of organizing such PD processes. We present an empirical account of how digital ecologies of our older participants have become an issue to tackle in the online PD workshops. Further, we provide a solution, a mapping technique, and report from our efforts to evaluate it, that should help to overcome the situation when digital ecologies become a problem in PD online.
    @inproceedings{cerna_making_2021,
    title = {Making online participatory design work: {Understanding} the digital ecologies of older adults},
    shorttitle = {Making online participatory design work},
    url = {https://dl.eusset.eu/handle/20.500.12015/4161},
    doi = {10.18420/ecscw2021_n22},
    abstract = {Participatory design (PD) is a meaningful approach to involve older adults into design; however, currently we lack understanding how to do such work online. In our paper, we report from a study where we organized 19 PD workshops online with older adults. We argue that to do so in a meaningful way, a mutually shaped understanding of older adults’ digital ecologies is at the core of organizing such PD processes. We present an empirical account of how digital ecologies of our older participants have become an issue to tackle in the online PD workshops. Further, we provide a solution, a mapping technique, and report from our efforts to evaluate it, that should help to overcome the situation when digital ecologies become a problem in PD online.},
    language = {en},
    urldate = {2021-05-25},
    booktitle = {Proceedings of 19th {European} {Conference} on {Computer}-{Supported} {Cooperative} {Work}},
    publisher = {European Society for Socially Embedded Technologies (EUSSET)},
    author = {Cerna, Katerina and Müller, Claudia},
    year = {2021},
    note = {Accepted: 2021-05-18T10:05:04Z
    Publisher: European Society for Socially Embedded Technologies (EUSSET)},
    }

2020


  • Nurses’ work practices in design: managing the complexity of pain

    Cerna Katerina, Weilenmann Alexandra, Ivarsson Jonas, Rysedt Hans, Sigridur Islind Anna, Lundin Johan, Steineck Gunnar
    Journal of Workplace Learning 2020;32(2):135–146. doi:10.1108/JWL-05-2019-0062
    [BibTeX] [Abstract] [Download PDF]
    Purpose The purpose of this study is to understand the activities in nurses’ work practices in relation to the design process of a self-monitoring application. Design/methodology/approach A design ethnographic approach was applied in this study. Findings To solve the problem of translating highly qualitative phenomena, such as pain, into the particular abstract features of a self-monitoring application, design participants had to balance these two aspects by managing complexity. In turn, the nurses’ work practices have changed because it now involves a new activity based on a different logic than the nurses’ traditional work practices. Originality/value This study describes a new activity included in nurses’ work practices when the nurses became part of a design process. This study introduces a novel way on how to gain a deeper understanding of existing professional practice through a detailed study of activities taking place in a design process. This study explores the possible implications for nurses’ professional practices when they participate in a self-monitoring application design process.
    @article{cerna_nurses_2020,
    title = {Nurses’ work practices in design: managing the complexity of pain},
    volume = {32},
    issn = {1366-5626},
    shorttitle = {Nurses’ work practices in design},
    url = {https://doi.org/10.1108/JWL-05-2019-0062},
    doi = {10.1108/JWL-05-2019-0062},
    abstract = {Purpose The purpose of this study is to understand the activities in nurses’ work practices in relation to the design process of a self-monitoring application. Design/methodology/approach A design ethnographic approach was applied in this study. Findings To solve the problem of translating highly qualitative phenomena, such as pain, into the particular abstract features of a self-monitoring application, design participants had to balance these two aspects by managing complexity. In turn, the nurses’ work practices have changed because it now involves a new activity based on a different logic than the nurses’ traditional work practices. Originality/value This study describes a new activity included in nurses’ work practices when the nurses became part of a design process. This study introduces a novel way on how to gain a deeper understanding of existing professional practice through a detailed study of activities taking place in a design process. This study explores the possible implications for nurses’ professional practices when they participate in a self-monitoring application design process.},
    number = {2},
    urldate = {2021-04-15},
    journal = {Journal of Workplace Learning},
    author = {Cerna, Katerina and Weilenmann, Alexandra and Ivarsson, Jonas and Rysedt, Hans and Sigridur Islind, Anna and Lundin, Johan and Steineck, Gunnar},
    month = jan,
    year = {2020},
    note = {Publisher: Emerald Publishing Limited},
    keywords = {Learning, italg, Design ethnography, Information Technology, Managing complexity, Nurses, Pain, Professional practice, Self-monitoring application, Technological change, Workplace learning},
    pages = {135--146},
    }

  • Investigating the use of digital artifacts in a community project of sustainable food practices: ‚My chili blossoms‘

    Engelbutzeder Philip, Cerna Katerina, Randall Dave, Lawo Dennis, Müller Claudia, Stevens Gunnar, Wulf Volker
    Proceedings of the 11th Nordic Conference on Human-Computer Interaction: Shaping Experiences, Shaping Society: 2020 New York, NY, USA. . doi:10.1145/3419249.3420089
    [BibTeX] [Abstract] [Download PDF]
    Research on food practices has become more common among scholars of HCI in recent years. Human-Food-Interaction (HFI) looks into the interplay of humans, food and technology. HFI, even so, has paid relatively little attention to the more collective elements of food practice, including social bonding [1]. The modest project we describe below aimed to say something about the use of digital artifacts to support community engagement for sustainable food practices. We participated, as action researchers (see [2]) in a grassroots movement that instigated a project around learning about food growing, using digital means to bring interested people together during times of physical distancing: In the project Vegetables seek a home, people from various backgrounds ‘adopted’ a chili-plant, they are invited to share what they like in a Telegram-Group, and to get learning-modules via a mailing-list. Through an analysis of the communal effort to actualize the project (video-calls, Telegram, wechange.de) and the content of the Telegram-Group for the chili-plant adopting parents and experts, we suggest some design implications for grassroots communities and sustainable food practice. In future research we intend an iterative design to support the community and its project, utilizing Holmgren’s 12 principles of permaculture design.
    @inproceedings{engelbutzeder_investigating_2020,
    address = {New York, NY, USA},
    series = {{NordiCHI} '20},
    title = {Investigating the use of digital artifacts in a community project of sustainable food practices: '{My} chili blossoms'},
    isbn = {978-1-4503-7579-5},
    shorttitle = {Investigating the use of digital artifacts in a community project of sustainable food practices},
    url = {https://doi.org/10.1145/3419249.3420089},
    doi = {10.1145/3419249.3420089},
    abstract = {Research on food practices has become more common among scholars of HCI in recent years. Human-Food-Interaction (HFI) looks into the interplay of humans, food and technology. HFI, even so, has paid relatively little attention to the more collective elements of food practice, including social bonding [1]. The modest project we describe below aimed to say something about the use of digital artifacts to support community engagement for sustainable food practices. We participated, as action researchers (see [2]) in a grassroots movement that instigated a project around learning about food growing, using digital means to bring interested people together during times of physical distancing: In the project Vegetables seek a home, people from various backgrounds ‘adopted’ a chili-plant, they are invited to share what they like in a Telegram-Group, and to get learning-modules via a mailing-list. Through an analysis of the communal effort to actualize the project (video-calls, Telegram, wechange.de) and the content of the Telegram-Group for the chili-plant adopting parents and experts, we suggest some design implications for grassroots communities and sustainable food practice. In future research we intend an iterative design to support the community and its project, utilizing Holmgren's 12 principles of permaculture design.},
    urldate = {2021-04-15},
    booktitle = {Proceedings of the 11th {Nordic} {Conference} on {Human}-{Computer} {Interaction}: {Shaping} {Experiences}, {Shaping} {Society}},
    publisher = {Association for Computing Machinery},
    author = {Engelbutzeder, Philip and Cerna, Katerina and Randall, Dave and Lawo, Dennis and M\üller, Claudia and Stevens, Gunnar and Wulf, Volker},
    month = oct,
    year = {2020},
    keywords = {Community, Learning, Sustainability, italg, Food, Grassroots, HFI, Sustainable HCI},
    pages = {1--4},
    }

  • Learning for life: Designing for sustainability of tech-learning networks of older adults

    Cerna Katerina, Dickel Martin, Müller Claudia, Kärnä Eija, Gallistl Vera, Kolland Franz, Reuter Verena, Naegele Gerhard, Bevilacqua Roberta, Kaspar Heidi, Otto Ulrich
    European Society for Socially Embedded Technologies (EUSSET) 2020;vol. 4, no. 2:12. doi:10.18420/ecscw2020_ws04
    [BibTeX] [Abstract] [Download PDF]
    In today’s complex society we need to learn on a daily basis during our whole life, especially when it comes to new digital tools on which our lives are increasingly more dependent. However, the way digital tools are designed is not well adjusted to learning how to use these tools in the later part of life. As a result, many older adults struggle with the integration of digital tools into their daily lives. Recently, older adults started to be involved in design through sustainable participatory approaches. However, this group is very heterogeneous and characterised by varied needs that have to be addressed with a fitting approach that is currently missing in E/CSCW and participatory design. In this workshop we therefore want to bring together researchers from different disciplines to develop new approaches that will help us to design for sustainable tech-learning networks of older adults. ECSCW and related participatory design approaches have a long history of collaboration with different disciplines. Our workshop hence addresses the issues of how we can better understand supporting learning for life of tech-communities of older adults from an interdisciplinary perspective in the context of sustainable participatory design. The workshop participants will therefore have an opportunity to learn about the challenges and opportunities related to learning for life of tech-communities of older adults in the context of sustainable participatory design as well as to reflect over their own disciplinary position in relation to this topic.
    @article{cerna_learning_2020,
    series = {Reports of the {European} {Society} for {Socially} {Embedded} {Technologies}},
    title = {Learning for life: {Designing} for sustainability of tech-learning networks of older adults},
    volume = {vol. 4, no. 2},
    issn = {2510-2591},
    shorttitle = {Learning for life},
    url = {https://dl.eusset.eu/handle/20.500.12015/4062},
    doi = {10.18420/ecscw2020_ws04},
    abstract = {In today’s complex society we need to learn on a daily basis during our whole life, especially when it comes to new digital tools on which our lives are increasingly more dependent. However, the way digital tools are designed is not well adjusted to learning how to use these tools in the later part of life. As a result, many older adults struggle with the integration of digital tools into their daily lives. Recently, older adults started to be involved in design through sustainable participatory approaches. However, this group is very heterogeneous and characterised by varied needs that have to be addressed with a fitting approach that is currently missing in E/CSCW and participatory design.
    In this workshop we therefore want to bring together researchers from different disciplines to develop new approaches that will help us to design for sustainable tech-learning networks of older adults. ECSCW and related participatory design approaches have a long history of collaboration with different disciplines. Our workshop hence addresses the issues of how we can better understand supporting learning for life of tech-communities of older adults from an interdisciplinary perspective in the context of sustainable participatory design. The workshop participants will therefore have an opportunity to learn about the challenges and opportunities related to learning for life of tech-communities of older adults in the context of sustainable participatory design as well as to reflect over their own disciplinary position in relation to this topic.},
    language = {en},
    urldate = {2021-04-15},
    journal = {European Society for Socially Embedded Technologies (EUSSET)},
    author = {Cerna, Katerina and Dickel, Martin and Müller, Claudia and Kärnä, Eija and Gallistl, Vera and Kolland, Franz and Reuter, Verena and Naegele, Gerhard and Bevilacqua, Roberta and Kaspar, Heidi and Otto, Ulrich},
    year = {2020},
    note = {Accepted: 2020-06-15T07:28:12Z
    Publisher: European Society for Socially Embedded Technologies (EUSSET)},
    keywords = {italg},
    pages = {12},
    }

  • Learning for life: Designing for sustainability of tech-learning networks of older adults

    Cerna Katerina, Dickel Martin, Müller Claudia, Kärnä Eija, Gallistl Vera, Kolland Franz, Reu Verena
    Proceedings of 18th European Conference on Computer-Supported Cooperative Work: 2020 .
    [BibTeX] [Abstract]
    In this position paper, we take a concept – or parts of it – and run away with it (Mol 2002) to explore its potential to better understand the non/appropriation of technologies by people in later life. We introduce the concept of the city as a machine for learning developed by Colin McFarlane (2011) in the field of urban studies. We identify elements we consider inspiring for the study of socio-technical systems, translate them to smaller entities of human-technology interactions and test their usability to analyze how older people in later life integrate digital technologies in their everyday lives. We do so from two distinct vantage points, i.e. empirical contexts: A participatory design project of a neighborhood platform and related privacy issues from the perspective of older tenants, and the introduction of a new automated emergency call system in seniors’ apartments in a serviced senior living facility. We conclude with the suggestion to understand the concept “machine for learning” as a normative notion and a claim to accept the challenge it implies.
    @inproceedings{cerna_learning_2020-1,
    title = {Learning for life: {Designing} for sustainability of tech-learning networks of older adults},
    abstract = {In this position paper, we take a concept – or parts of it – and run away with it (Mol 2002) to explore its potential to better understand the non/appropriation of technologies by people in later life. We introduce the concept of the city as a machine for learning developed by Colin McFarlane (2011) in the field of urban studies. We identify elements we consider inspiring for the study of socio-technical systems, translate them to smaller entities of human-technology interactions and test their usability to analyze how older people in later life integrate digital technologies in their everyday lives. We do so from two distinct vantage points, i.e. empirical contexts: A participatory design project of a neighborhood platform and related privacy issues from the perspective of older tenants, and the introduction of a new automated emergency call system in seniors’ apartments in a serviced senior living facility. We conclude with the suggestion to understand the concept “machine for learning” as a normative notion and a claim to accept the challenge it implies.},
    language = {en},
    booktitle = {Proceedings of 18th {European} {Conference} on {Computer}-{Supported} {Cooperative} {Work}},
    publisher = {European Society for Socially Embedded Technologies (EUSSET)},
    author = {Cerna, Katerina and Dickel, Martin and Müller, Claudia and Kärnä, Eija and Gallistl, Vera and Kolland, Franz and Reu, Verena},
    year = {2020},
    keywords = {italg},
    pages = {6},
    }

  • From Design Space to Learning Place: Conceptualization for Meta Design Space for and with Older Adults

    Cerna Katerina, Müller Claudia
    International Reports on Socio-Informatics (ed. Volkmar Pipek & Markus Rohde) 2020;17(2):38–47.
    [BibTeX] [Download PDF]
    @article{cerna_design_2020,
    title = {From {Design} {Space} to {Learning} {Place}: {Conceptualization} for {Meta} {Design} {Space} for and with {Older} {Adults}},
    volume = {17},
    url = {https://www.iisi.de/wp-content/uploads/2021/05/IRSIV17I2.pdf},
    number = {2},
    journal = {International Reports on Socio-Informatics (ed. Volkmar Pipek \& Markus Rohde)},
    author = {Cerna, Katerina and Müller, Claudia},
    year = {2020},
    keywords = {italg},
    pages = {38--47},
    }

  • Learning for Life: A Workshop Report

    Cerna Katerina, Müller Claudia
    International Reports on Socio-Informatics (ed. Volkmar Pipek & Markus Rohde) 2020;17(2):5–9.
    [BibTeX] [Download PDF]
    @article{cerna_learning_2020-2,
    title = {Learning for {Life}: {A} {Workshop} {Report}},
    volume = {17},
    url = {https://www.iisi.de/wp-content/uploads/2021/05/IRSIV17I2.pdf},
    number = {2},
    journal = {International Reports on Socio-Informatics (ed. Volkmar Pipek \& Markus Rohde)},
    author = {Cerna, Katerina and Müller, Claudia},
    year = {2020},
    keywords = {italg},
    pages = {5--9},
    }

2019


  • Supporting self-management of radiation-induced bowel and bladder dysfunction in pelvic-cancer rehabilitation: An ethnographic study

    Cerna Katerina, Ivarsson Jonas, Weilenmann Alexandra, Steineck Gunnar
    Journal of Clinical Nursing 2019;28(13-14):2624–2634. doi:https://doi.org/10.1111/jocn.14849
    [BibTeX] [Abstract] [Download PDF]
    Aims and objectives To describe and understand strategies that oncological nurses use to support self-management of radiation-induced bowel and bladder issues in pelvic-cancer rehabilitation patients. Background Nurse-led self-management of radiation-induced bowel and bladder issues holds the potential to support cancer survivors. Design An ethnographic approach was applied in this study, which adhered to Consolidated Criteria for Reporting Qualitative Research (COREQ) guidelines. Methods Data collection was conducted in Sweden between October 2015–April 2018, involving observations of nurses’ daily work, formal and informal interviews, individual and group interviews, and reviews of relevant documents used in the studied practice. Furthermore, 15 supportive nurse–patient talks were observed, and an ethnographic analysis was performed. Results The analysis identified the following three categories of nursing strategies that support self-management of radiation-induced bowel and bladder issues in pelvic-cancer rehabilitation patients: encouraging self-reflection, tailoring solutions together and keeping patients motivated. Nurses and patients jointly make sense of patients’ symptoms using data that patients collect about themselves. Based on their shared understanding, they can co-create solutions to meet each individual patient’s needs and develop routines to keep the patient motivated in performing the devised solutions. Conclusions The results indicate that the strategies nurses use to support patients in self-management of radiation-induced bowel and bladder issues entail intertwining patients’ experiences with their nurses’ medical knowledge and specific clinical practice. Nurses’ strategies build on their ability to connect patients’ experiences and the elements of their own work practice. Relevance to clinical practice A deeper understanding of nurses’ strategies to support self-management of radiation-induced bowel and bladder issues in pelvic-cancer rehabilitation patients can improve other self-management programmes, inform nurses’ education and aid in the design of tools for pelvic-cancer rehabilitation support.
    @article{cerna_supporting_2019,
    title = {Supporting self-management of radiation-induced bowel and bladder dysfunction in pelvic-cancer rehabilitation: {An} ethnographic study},
    volume = {28},
    copyright = {© 2019 John Wiley \& Sons Ltd},
    issn = {1365-2702},
    shorttitle = {Supporting self-management of radiation-induced bowel and bladder dysfunction in pelvic-cancer rehabilitation},
    url = {https://onlinelibrary.wiley.com/doi/abs/10.1111/jocn.14849},
    doi = {https://doi.org/10.1111/jocn.14849},
    abstract = {Aims and objectives To describe and understand strategies that oncological nurses use to support self-management of radiation-induced bowel and bladder issues in pelvic-cancer rehabilitation patients. Background Nurse-led self-management of radiation-induced bowel and bladder issues holds the potential to support cancer survivors. Design An ethnographic approach was applied in this study, which adhered to Consolidated Criteria for Reporting Qualitative Research (COREQ) guidelines. Methods Data collection was conducted in Sweden between October 2015–April 2018, involving observations of nurses’ daily work, formal and informal interviews, individual and group interviews, and reviews of relevant documents used in the studied practice. Furthermore, 15 supportive nurse–patient talks were observed, and an ethnographic analysis was performed. Results The analysis identified the following three categories of nursing strategies that support self-management of radiation-induced bowel and bladder issues in pelvic-cancer rehabilitation patients: encouraging self-reflection, tailoring solutions together and keeping patients motivated. Nurses and patients jointly make sense of patients’ symptoms using data that patients collect about themselves. Based on their shared understanding, they can co-create solutions to meet each individual patient's needs and develop routines to keep the patient motivated in performing the devised solutions. Conclusions The results indicate that the strategies nurses use to support patients in self-management of radiation-induced bowel and bladder issues entail intertwining patients’ experiences with their nurses’ medical knowledge and specific clinical practice. Nurses’ strategies build on their ability to connect patients’ experiences and the elements of their own work practice. Relevance to clinical practice A deeper understanding of nurses’ strategies to support self-management of radiation-induced bowel and bladder issues in pelvic-cancer rehabilitation patients can improve other self-management programmes, inform nurses’ education and aid in the design of tools for pelvic-cancer rehabilitation support.},
    language = {en},
    number = {13-14},
    urldate = {2021-04-16},
    journal = {Journal of Clinical Nursing},
    author = {Cerna, Katerina and Ivarsson, Jonas and Weilenmann, Alexandra and Steineck, Gunnar},
    year = {2019},
    note = {\_eprint: https://onlinelibrary.wiley.com/doi/pdf/10.1111/jocn.14849},
    keywords = {ethnography, italg, nurses, nurses’ strategies, nurses’ work, pelvic-cancer rehabilitation, radiation-induced dysfunction},
    pages = {2624--2634},
    }

  • Supporting Appropriation of Self- Monitoring Tools in Clinical Settings: The Case of Pain in Cancer Rehabilitation

    Cerna Katerina, Lundin Johan, Islind Anna Sigridur, Steineck Gunnar
    European Society for Socially Embedded Technologies (EUSSET) 2019. doi:10.18420/ecscw2019_p01
    [BibTeX] [Abstract] [Download PDF]
    Self-monitoring tools, which support clinicians’ work through collection of patient generated data, have been used increasingly in chronic care. Their appropriation by the patients is crucial but at the same time can be problematic, as unexpected use of tools used as a support for clinical decisions might lead to wrong decisions. In this poster, we present preliminary findings from an ethnographic study from a pelvic cancer rehabilitation clinic. We present an empirical example of a patient who appropriated a self-monitoring application to register her pain in an unexpected way. Our findings aim to understand better how to support appropriation of self-monitoring tool in a clinical setting.
    @article{cerna_supporting_2019-1,
    series = {Reports of the {European} {Society} for {Socially} {Embedded} {Technologies}},
    title = {Supporting {Appropriation} of {Self}- {Monitoring} {Tools} in {Clinical} {Settings}: {The} {Case} of {Pain} in {Cancer} {Rehabilitation}},
    issn = {2510-2591},
    shorttitle = {Supporting {Appropriation} of {Self}- {Monitoring} {Tools} in {Clinical} {Settings}},
    url = {https://dl.eusset.eu/handle/20.500.12015/3286},
    doi = {10.18420/ecscw2019_p01},
    abstract = {Self-monitoring tools, which support clinicians’ work through collection of patient generated data, have been used increasingly in chronic care. Their appropriation by the patients is crucial but at the same time can be problematic, as unexpected use of tools used as a support for clinical decisions might lead to wrong decisions. In this poster, we present preliminary findings from an ethnographic study from a pelvic cancer rehabilitation clinic. We present an empirical example of a patient who appropriated a self-monitoring application to register her pain in an unexpected way. Our findings aim to understand better how to support appropriation of self-monitoring tool in a clinical setting.},
    language = {en},
    urldate = {2021-04-16},
    journal = {European Society for Socially Embedded Technologies (EUSSET)},
    author = {Cerna, Katerina and Lundin, Johan and Islind, Anna Sigridur and Steineck, Gunnar},
    year = {2019},
    note = {Accepted: 2019-05-22T04:07:29Z
    Publisher: European Society for Socially Embedded Technologies (EUSSET)},
    keywords = {italg},
    }

2018


  • Decision-support system for cancer rehabilitation: designing for incorporating of quantified data into an existing practice

    Cerna Katerina, Islind Anna Sigridur, Lundin Johan, Steineck Gunnar
    Proceedings of the 10th Nordic Conference on Human-Computer Interaction: 2018 New York, NY, USA. . doi:10.1145/3240167.3240255
    [BibTeX] [Abstract] [Download PDF]
    Recent development in self-monitoring devices indicates that using quantified data in clinical practice supporting chronic diseases management holds a big potential. However, exploration of this design space also suggests that some unattended challenges still exist, such as a low adoption rate of self-monitoring tools in existing clinical practice. In this text, we therefore focus on the ways healthcare professionals use quantified data in their practice. We draw on empirical data from an ethnographic study of a cancer rehabilitation center. Our preliminary findings suggest that the self-monitoring tool supported the nurses‘ work because it became a functional complement to their work by allowing them to appropriate the device to their and the patients‘ needs.
    @inproceedings{cerna_decision-support_2018,
    address = {New York, NY, USA},
    series = {{NordiCHI} '18},
    title = {Decision-support system for cancer rehabilitation: designing for incorporating of quantified data into an existing practice},
    isbn = {978-1-4503-6437-9},
    shorttitle = {Decision-support system for cancer rehabilitation},
    url = {https://doi.org/10.1145/3240167.3240255},
    doi = {10.1145/3240167.3240255},
    abstract = {Recent development in self-monitoring devices indicates that using quantified data in clinical practice supporting chronic diseases management holds a big potential. However, exploration of this design space also suggests that some unattended challenges still exist, such as a low adoption rate of self-monitoring tools in existing clinical practice. In this text, we therefore focus on the ways healthcare professionals use quantified data in their practice. We draw on empirical data from an ethnographic study of a cancer rehabilitation center. Our preliminary findings suggest that the self-monitoring tool supported the nurses' work because it became a functional complement to their work by allowing them to appropriate the device to their and the patients' needs.},
    urldate = {2021-04-16},
    booktitle = {Proceedings of the 10th {Nordic} {Conference} on {Human}-{Computer} {Interaction}},
    publisher = {Association for Computing Machinery},
    author = {Cerna, Katerina and Islind, Anna Sigridur and Lundin, Johan and Steineck, Gunnar},
    month = sep,
    year = {2018},
    keywords = {italg, cancer rehabilitation, clinical practice, decision-support system, quantified data},
    pages = {747--753},
    }